Make Care

Designing for Equality
Project Overview
Sometimes it is the close cases the ones that most attract our attention and with which we can empathize better. This project was inspired by the case of a close friend.
Epidermis Bulosa, also known as the ‘Butterfly disease’ is a non-contagious and uncommon disease characterized by the formation of blisters and wounds on the skin and mucous membranes. In Chile there are
currently about 250 people with this disorder, mostly boys and girls. So far it has no cure and the treatment consists of avoiding friction caused by the wounds and treating the blisters with bandages and daily cures, since these are cases of people with extremely delicate skin. For these cares, it is also a disease that is accompanied by a high dependence.
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Our Contributions
Joaquin Rosas conceived the project, developed the product and oversaw its implementation. It remains open source forever for anyone to fabricate and use.
Make Care
Designing for Equality
‘Make Care’ was born after having had the opportunity to work with people  with Epidermis Bulosa. Together, we detect a series of needs and  possibilities. The project had a first stage of ethnographic research. From  observation and participation with different groups (first, adults, adolescents  and children; secondly, according to the condition of their wounds; and  finally, according to how they lived, alone or with more people) an audience  was chosen with which to continue the process: adolescents were selected  due to the particular situation of overcare by many parents and guardians  and due to their desire for independence, especially to carry out certain daily  household chores. After analyzing their routines, objects used and the  environment, it was possible to define some transversal actions on which  they depended on another person and that hindered their personal  development. Mainly, they required help to eat and to change their bandages  in the mornings and evenings. Therefore, this project involves the redesign of  various utensils as scissors, a plate, a glass and also a magnetic adapter that  allows greater independence.

All these new digitally designed models are  available on the Internet to be downloaded and printed in 3D without cost.  The project was presented to the Debra Foundation, one of the most  recognized centers in Chile and in the world for its work with people with Epidermis Bulosa, to spread this project and designs among the affected  community. The project won several awards as “Best of the best” of Chile  Diseño at the Biennial of Design in 2017 and the Award for Design of  Specialized Products for Industry, Science and Productive Sectors in 2017,  among others.